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Rank: Advanced Member  Groups: Registered
Joined: 12/5/2009 Posts: 48
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Hi, I was wondering whether any others have had the same experience as I have had. A couple of times I have missed my weekly dose of MXT for various reasons and each time after a few days my joints become easier and more mobile. The first time I thought it was just a one off but it keeps happening. I have been taking 15mg of MXT for almost two years so I know it is still in my system but the easing of my joints without it surprises me. I have not increased any other drugs to compensate it is very strange. I would be intersted if anyone else has experienced this or am I the only strange one. Jayne 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Jayne,
I haven't experienced this when I've missed taking mtx but it does sound similar to what is happening to Jean B!
Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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 I daren't miss it !!! Lyn x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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LynW wrote: I daren't miss it !!! Lyn x Lyn i feel like this but i just had a high liver and was fine for 3 missed doses it hangs about for 6 weeks . christine The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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chockers wrote:LynW wrote: I daren't miss it !!! Lyn x Lyn i feel like this but i just had a high liver and was fine for 3 missed doses it hangs about for 6 weeks . christine Hi Chrissie I know, but I'm a real scaredy cat when it comes to meds.! Sometimes I feel quite rebellious but ... I'm a good girl at heart and always do what the doctor says, even though I don't always believe him  Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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i think as well, you have to bear in mind the reason you stopped taking the MTX.
if it is post infection your body is often too busy fighting the bug to bother fighting itself.
Jenni xhow to be a velvet bulldoser
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 351
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I only managed about 6 weeks without MTX last year, but then couldn't take any DMARDs due to infected hip replacement. As a consequence I'd never experienced such unrelenting, excrutiating pain in my whole 39+ year RA history! I'd previously taken MTX for 26+ years. Carol
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Rank: Advanced Member Groups: Registered
Joined: 12/5/2009 Posts: 48
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Hi,
Am back on the MXT again as of yesterday so will be interested to see if things change. Going to see the consultant next week so will have a word with him and see what he says.
Jayne
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 288 Location: LUTON
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 I have just been to appointment with rheumy consultant, he said that as i was having Fusion (ankle) that i should not take mtx (20mg) a week prior to opp and 2wks after opp, he said that i should not start again if i have stiches in, i have had foot opps b4 the nurse said it was ok to continue with jabs, they all have their own way its a bit of a worry as you dont want a flare alongside of the opp. Opp is still set for 15th fingers xxed. Anne-marie xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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I don't really like talking about this, because I don't want anyone to follow my bad example.
I took myself off mtx 6 weeks ago because I was fed up with feeling sick and having liver probs. Needless to say, since I came off the stuff, all the blood test results have gone back to normal, including ESR and CRP, which have NEVER been anywhere near normal for 7 years or more. I'm sure this happy state of affairs won't continue - in fact I've noticed that I am not quite as good in the mornings, am not sleeping more than 3 or 4 hours most nights and am starting to have bad shoulders, hands and wrists again. BUT I did feel better for a month or so. I guess it's back on the wretched stuff again - but I'll leave it until tomorrow and take just 10 mgs instead of 20 mgs and seehow it goes.
Love Jeanxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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HI jean sorry to see the pain is coming back,and that yove had so much trouble re drug. not easy is it.#helps some ways not others a constant juggle my gp says between enough medication and not to much to casue extra problems. grr. i also felt quite good 3 weeks off mtx but had started sleeping worse mornings stiffness and swelling had started creep up i stopped only due to illness. hope u find balance. my previous stements re mtx done nothing i can now see now all true-that it needed another oen to work with which planequil was for me seems side effects that now stopped. take care lv melly cuddly cats make my world seem so much more fun
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